Returning to Kansas City

Welcome back to the next Thriving not Just Surviving blog post. After an encouraging round of doctor appointments last Monday, I was given the green light to return to Kansas City. Maureen and I returned on Tuesday and I have been settling in for the past few days.

There isn’t much new information to report, but I continue to be stable and free of seizures for two months. We probably will never know the actual cause of the seizures, but the anti-seizure medication is working. My neurologist says that I will be on this drug for at least two years and if the seizures never return we would consider lowering the dosage. The side effects of this drug have continued to decrease now that I’ve been on it for over two months; but I occasionally have to deal with brain fog, fatigue and minor achiness.

My shoulder is also doing well and the surgeon estimates that its probably 60-70% healed. I will start weight bearing exercises at physical therapy next week. Pain is very minimal and most of my range of motion has returned.

The recurring advice from my doctors is to take things slow and ensure that I get plenty of rest. I’m glad that the epilepsy continues to be under control, but I have to be extra careful now that I have to manage lung cancer and epilepsy.

I’ve been working remotely throughout my time in St. Louis and will continue to do so for the next week. I plan to return to the office the first week of May. I am very excited to get back to  a more normal work routine.

There won’t be anything major occurring over the next few weeks. I plan to continue getting stronger and increasing the intensity of my workouts and therapy sessions. Maureen and I will return to St. Louis at the end of May for another chest CT scan.