Day 7 EMU and HOME

Day 7 LAST DAY July 30, 2018 EMU, Barnes Hospital/Home to his parents in STL

We were discharged today at 5pm. The discharge process takes a very long time to ensure that everything is in place. We seem to be a special case as well. Since Greg did not have any seizures the neuro team at the hospital had to touch base with our current STL neurologist to decide what approach to take with medicine. They finally decided to keep the level of Keppra, (the medicine he has been on since the start) and take away the extra medicine that was added when we were in KC at the hospital after his July 15^th seizure. However, they added in a medicine he was on for or short time and changed it to twice a day to help fill in the gap so to speak. The next few days will be a challenge for hiato reacclimate to his seizure medicine plus the additions. He has been off all medicine since Tuesday evening, the fog from the medicine had cleared and he’s been very clear-minded the last few days! The medicine fog is just one of the trade-offs with attempting to be seizure free. He will readjust again.

The last 7 days were challenging in many ways. Greg was essentially in a small room, unable to leave or shower. He kept good spirits and was very glad to get home and shower tonight! We trust that in the big picture things were gained from this stay. We will follow up with our neurologist (hopefully soon) and should see more of the benefits that came from this. We are so grateful to all of you.

(If you prayed the Solanus Casey Novena with us, thank you, today was the last day and it is his first official Feast Day!)

Blessings